Rare Disease Day 2020

Posted by Kelsey Malchi on 2/18/2020 1:45:00 PM

SUPPORT RARE DISEASE DAY AND WEAR YOUR ‘GENES’ FEBRUARY 28TH

Rare Disease Day is February 29th.  This is a day to raise awareness for patients, families, friends, teachers and caregivers who aid in helping others who are special in our world.   It’s a call for action for people living with a rare disease to realize their potential for participation in family, work and social life.

The 300 million people living with a rare disease around the world and their families face common challenges in their daily lives.  There are over 6000 rare diseases that are chronic, progressive, degenerative, disabling and frequently life threatening. Due to the rarity of each individual disease and scattered populations, expertise and information is scarce.  The long-term goal of Rare Disease Day is increased equity for people living with a rare disease and their families. 

What can Russell Bears do to support?

On Friday, February 28th wear your ‘genes’ (blue jeans) to help bring awareness to these efforts of support for these people and their families—perhaps there is someone you know that is living with a rare disease…perhaps your child has a classmate that is living with a rare disease? 

Need more in order to support your child in understanding Rare Disease Day?  Visit https://rarediseases.org/rare-disease-day/

Each one of us can make a difference. Together we make change.

- Barbara Mikulski